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Назив: Transposition and implementation of EU rare disease policy in Eastern Europe
Аутори: Pejcic, Ana
Iskrov, Georgi
Raycheva, Ralitsa
Stefanov, Rumen
Jakovljevic, Mihajlo
Датум издавања: 2017
Сажетак: © 2017 Informa UK Limited, trading as Taylor & Francis Group. Introduction: А series of European Union (EU) political decisions have made rare diseases one of the cornerstones of the common European health policy. Adopted in 2009, Council Recommendation on an action in the field of rare diseases aimed to serve as a policy-making guideline. However, the implementation report, which followed it, neither performed detailed cross-country comparison, nor assessed the impact of the policies. Areas covered: A 10-indicator set was elaborated to structure the review and to describe rare disease activities in 14 Eastern European countries. Expert commentary: Taking into account all indicators, EU member states outperform candidate and potential candidate countries in terms of rare disease policy planning and implementation. Hungary is the top performer, followed by Bulgaria and Czech Republic. Non-EU countries form the bottom tier, with Serbia being the best ranked among them. While EU adhesion is a major facilitator for planning and adopting rare disease policies, local stakeholders are the triggering factor for their successful implementation. European reference networks are likely to be the future of rare disease activities in the EU. They need to synchronize and closely collaborate with all important EU projects in the field of rare diseases if they are to achieve their objectives.
URI: https://scidar.kg.ac.rs/handle/123456789/11395
Тип: review
DOI: 10.1080/14737167.2017.1388741
ISSN: 1473-7167
SCOPUS: 2-s2.0-85032990300
Налази се у колекцијама:Faculty of Medical Sciences, Kragujevac

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